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The 10-month old’s infant life support is to be switched off after an order passed by the top European Human Rights Court, as his parents are left devastated with this tragic turn of events and unable to stick to their promise of taking their son home to breathe his last.
Charlie Gard was suffering from an extremely rare genetic disorder called mitochondrial DNA depletion syndrome (only 16 cases have been identified in the world). This had robbed him of his ability to move his arms and legs, eat or even breathe on his own.
Brought to the Great Ormond Street hospital at 2 months when his symptoms first became obvious, parents Connie and Chris say Charlie has been a prisoner since then and that Great Ormond Street’s treatment has been “inhuman”.
Connie and Chris searched far and wide and came across a pioneering treatment in the USA which would help in prolonging his life, and even raised 1.3 million dollars through crowd sourcing to pay for the treatment, but the courts denied them access to move Charlie between countries, instead ruling to shut down his life support system.
The fight for Charlie Gard’s life has touched the world, and Charlie’s dad Chris made a desperate appeal to the courts in April, clutching his sons monkey, begging that his son, who was the apple of his eye, deserved this chance to live.
Charlie Gard’s case has been through Britain's High Court and Supreme Court, and was then taken to the European Court of Human Rights, where the judgement to take him off life support was upheld.
While the life support was initially due to be shut down on June 30th, after a heart-wrenching plea from Chris and Connie, Great Ormond Street has agreed to grant them more time with little Charlie to say goodbye.
Even after offering to pay privately to have Charlie returned home, to have a bath and sleep in his cot, they were refused by the hospital, as well as the court. The devastated parents wept in despair about their “trooper” baby, as they said that “He will fight to the very end but we’re not allowed to fight for him anymore.”
We at mycity4kids cannot even begin to imagine the plight of Charlie’s parents, and can only hope he’s in a better place now and the Almighty grants Connie and Chris to get over this immense loss.
Image Courtesy: www.thesun.co.uk